Waiting for the Other Foot to Drop.Posted: April 3, 2013
Disclaimer: I usually write about my life and share things that I think are funny or entertaining, but that hopefully don’t get too personal or over-sharey. But to prove I’m not a one-trick pony, today I’ve written about something intensely personal that totally over-shares and isn’t funny at all! Enjoy!
My doctor tells me that he believes I may have Multiple Sclerosis. He isn’t 100% sure. He said it could also be this other condition that is apparently so complex that even Google can’t paint me a clear picture of it. But he says he doesn’t really think it’s that – and thank goodness because it would be so much more convenient to have a disease everyone has already heard of. Less explaining; more sympathy. And let’s be honest: Sympathy is the only good thing about having a disease in the first place.
Over the past few years, I have had every test imaginable. Some have been positive. Some have been negative. Recently, more evidence in the “for” camp has emerged. But MS is a slippery bastard and I’m told it isn’t always easy to diagnose, ‘a diagnosis of exclusion’ they call it. So at this point it appears that my white matter disease falls into a grey area. In other words, they know something is wrong in my brain, they just can’t tell me exactly what it is.
My doctor told me there is nothing to do but wait and see. Since I am nothing if not obedient, for a while I did this. And as I waited, I considered whether or not to fall apart over this situation. I even tried it for a short time – doing an internet residency in Neurology and learning just enough to scare the shit out of myself. This was not a good idea. But eventually I decided that the possibility of having MS – or the actuality for that matter – is not something worth going to pieces over. For one thing, who has the time? For another, I just don’t want to give my life over to that kind of fear. When I think like this, I feel righteous and strong and capable and in control. I like that feeling. And I feel that way most of the time. Most of the time.
But there are times, in the quiet moments when I’m not thinking about the things I have to do, or what to make for dinner, or how I can crash my minivan for the insurance money without hurting anyone– that the fear sneaks in. It pounds at my chest wall and swirls in my gut. It keeps me awake at night with images of “What if?” Fear will do that to try to get my attention. Just like a tantrum-throwing child, fear gains strength from my tolerance and responsiveness. I used to think that worrying about something could prevent it from happening. Like my worry was proof that I was not so egotistical as to believe that it could not happen to me. I thought that if I worried about it enough, the worry would form a shield over me forcing the Big Bad to skip me and move on to some arrogant sumbitch who thought they were invincible. (Ironically, it was pretty arrogant of me to think that.)
But now I know better. The truth is that things happen whether you worry about them or not. Fear – or the absence of it – cannot stave off disability or prevent disease from striking or keep your loved ones safe. If only it could. Unfortunately fear can do many things, but it can’t change your fate, except maybe to ruin the present while you are waiting for the thing you’re afraid of to come and get you.
This brings me back to my doctor’s “wait and see” advice. The more I thought about it, the more I thought that waiting for something like MS to show itself – or not – seemed like just another way to be afraid of it. So I decided against waiting. I’ve opted instead for denial –stuffing a sock in the mouth of my Jewish ancestry and giving my Northern Irish roots permission to take over (which is fine considering the Jewish part of me still has to whisper M.S. when she talks about it). Denial, while not normally my go-to response, is the strongest response to this situation. It is a brick wall, an impenetrable fortress. Denial will kick fear’s ass and stuff it down deep inside where it can’t take anything away from me. Because once again, like a whiny child, fear will not perform without an audience.
So even with my doctor’s advice to wait and see, I’ve made up my mind that I am not going to sit around and wait for MS. I know that it will get my attention if it needs me. And until that day comes, if it ever does- I will wait for my kids to stop fighting with each other, for someone to invent zero calorie potato chips that tastes the same as regular, for my husband to take an intense interest in housework – but I will not wait for MS.
Goodness knows it won’t wait for me.